Guide to the Living with Dementia Toolkit
A guide for those living with dementia and their carers and family. The toolkit is arranged in 5 themes – stay safe and well, stay connected, keep a sense of purpose, stay active, stay positive. It was created based on research and co-production with a group of people with dementia and carers. Includes links to research and signposts to further information for resources to help people with dementia. An example of how documents can be made accessible, with explanations about QR codes etc
Dementia and Hope
This document sets out the vision of a group of dementia organisations in the UK who have come together as One Dementia Voice. It outlines how these organisations are thinking differently about their support for those living with dementia, and how wider societal barriers can be overcome with the right support. It addresses frequently asked questions and provides suggestions on how to embed ‘Dementia and Hope’ into your organisation. There are also many personal stories and examples of how ‘reasonable adjustments’ can and should be made for people with dementia.
Young Dementia Network – The Angela Project
Good practice in young onset dementia
This document summarises the findings from The Angela Project, a 3 year long Alzheimer’s Society funded research study. Researchers consulted young people living with dementia and their families, international clinical experts and service providers in the largest study of young onset dementia ever carried out in the UK. It aims to raise awareness of inequalities and provide evidence-based recommendations for good practice on areas of diagnosis, patient support, post-diagnostic support and service design and delivery.
Libraries and dementia: connecting people with dementia
In 2022, Innovations in Dementia working with a number of libraries in the UK to explore their experiences of dementia and opportunities for further work and connection. This document outlines some key findings from that research, divided into 4 key sections: Key statistics about digital exclusion, ‘how to’ tips on bidding for and managing funded dementia projects, case study examples and ‘how to’ guides for supporting and encouraging people to access simple technology. Whilst aimed at libraries, findings apply to anyone considering dementia support and digital inclusion
IDEAL Policy Brief: Improving the experience of dementia and enhancing active life
IDEAL is the largest study of living well with dementia in Great Britain and began in 2014. The eveidence will enable the development of new policy, interventions and initiatives to transform the lives of people with dementia and their carers. The policy brief sets out key messages, key findings, provides information about IDEAL and signposts to resources and research papers
Youth Matters – Your National Youth Strategy
The Labour Party National Youth Strategy, which outlines the actions the government are committing to over the next 10 years to secrure the future that young people have told them that they want
Youth Matters – State of the Nation 2025
A report commissioned by DCMS’s Secretary of State, highlighting current patterns, challenges, and wants that are shaping young people’s lives. It draws together voices of 14,000+ young people aged 10-21 (up to 25 for those with Special Educational Needs and Disabilities (SEND)) who engaged in the National Youth Strategy Survey. It also uses insights collated through policy engagement, qualitative data collection and wider evidence collation. The report is partially based on commissioned research that was led by Savanta and their colleagues at My Life My Say and the #iwill Movement (Volunteering Matters and UK Youth) including their Youth Collaborators.
Dementia: A cross-sector manifesto
This manifesto was created ahead of the 2024 General Election, calling on the government to make dementia a political priority. It highlights dementia as the UK’s biggest killer and a growing health and social care challenge, with costs projected to reach £90bn by 2040. Written by 5 organisations in collaboration (Dementia UK, Alzheimer’s Research UK, Alezheimer Scotland, UK Dementia Research Institutre & Alzheimer’s Society), the document outlines 5 priority areas for action – prevention, early diagnosis, post-diagnostic support, social care funding and investment in research. Scientific breakthroughs offer hope, but urgent policy and funding commitments are needed to transform care
Young Dementia Network – Young onset dementia pathway
Recommendations from the Young Dementia Network Steering Group on the diagnosis and support for people with young onset dementia and their families. This document brings together the experience and expertise of people affected by young onset dementia and the people who work with and support them. It highlights that the impact of dementia can be very different depending on your stage of life and that because of this, services must be tailored to meet those needs.
The State of Health and Care of Older People in England 2025
A few months ago the incoming Government published a 10 Year Health Plan, which sets out the transformational change it believes is needed to put the NHS on an even keel and make it fit for the future. Age UK strongly supports its main thrust, the aim of shifting the emphasis in healthcare ‘from hospital to home’ through the development of a Neighbourhood Health Service. We were pleased and honoured to be able to contribute to the development of this part of the Plan. As the initiative is rolled out ….