Citizen Leadership: Co-Creating Integrated Care
To conduct the research, the team listened to people who have sought to influence health and care systems based on their lived experience and have heard their stories about being involved. Participants were patients, family caregivers, and community members who engaged in health and care system design in different parts of the world. Using their personal experience and that of their wider communities and networks, participants have helped to shape how professionals, organisations and indeed local and national governments have understood what is important to those in similar situations, and what person-centred and co-ordinated care will mean for them. Through hearing about their experiences, the study looks to identify what needs to change to achieve people-driven integrated care.